One of the gifts I’ve received from blogging is that, while I am writing about the world, the world will occasionally pop its face into mine. Each time this happens, I am humbled and honored to be able to look into the very private places in people’s lives. The latest is a letter I received from the husband of a woman who was diagnosed with malignant pleural mesothelioma and has now lost a lung to the disease. Heather Von St. James was 36 years old and the mother of a three-month-old daughter, Lily Rose, when she was diagnosed. What she and her husband have done since then is a testament to their courage and to their love.
I won’t tell you Heather’s story, because you should read it yourself. I will only say that I stopped reading at the part in which Heather describes how she contracted the disease. It was awhile before I could continue reading.
I am no stranger to lung disease. I lost a close friend to lung cancer last year (and no, she was not a smoker). I have another close friend who lost a father to COPD and was recently hospitalized with her own COPD. While I have no lung disorder, per se, I do have a mechanical disorder that now prevents me from running, walking up stairs or uphill for more than a short time and, when I am in self-absorbed victim mode, sometimes makes me want to scream at the tiny injustice life has perpetrated against me.
Please read Heather’s story. When she had surgery to remove her lung, her sister dubbed that day Lung Leavin’ Day. Since then, Heather and her husband, Cameron, have turned that day into a symbol of awareness, of hope, and of a call to action. Read about the unique way they developed to symbolize the letting go of their fears and a way we can release our own.
February 2, 2014. Go smash a plate.
mimijk
January 23, 2014
I just re-posted on my blog site too.
Life in the Boomer Lane
January 23, 2014
Great! Until I received Cameron’s email, I had never thought people could contract mesothelioma outside a work environment. It’s so important to spread the word.
mimijk
January 23, 2014
It breaks my heart to think that she contracted this disease by wearing her dad’s jacket. There’s something so bittersweet about that visual.
Lynne Spreen
January 23, 2014
I wrote about this same family a few months ago: http://anyshinything.com/2013/08/09/handling-caregiving/
Life in the Boomer Lane
January 23, 2014
Great post, Lynne. As we age, it does become more and more important to know how to be caregivers, supporters, listeners to those with a wide variety of illnesses. We are often silent because we simply don’t know what to say, and we stay away because we don’t know what to do. Care giving, of course, is the most valuable way to help, but sometimes just being there has a great value. We also have to learn how to support those who are the care givers, so that they don’t feel isolated.
btg5885
January 23, 2014
Thanks for sharing. I love the idea of Lung Leaving Day. By the way, I read this morning about two sisters who received lung transplants from the same deceased donor. The doctors said it was a first for them. When I first opened your post, I had that story in mind. People can overcome much with a good attitude and support. Great story. BTG
Life in the Boomer Lane
January 23, 2014
Thanks. These are courageous people, indeed. What a wonderful story about the sisters and the donor.
lauramacky
January 23, 2014
As a person who suffers from a myriad of physical issues, I’m always in awe of someone who can make something positive out of what they’ve been through. Thanks for sharing.
Life in the Boomer Lane
January 23, 2014
You are welcome, Laura. Yes, I feel that way as well.
nicolesassy123
January 23, 2014
I have a friend who had a double….lung transplant and she received it only a few weeks after being informed she needed it. A miracle for sure
Life in the Boomer Lane
January 23, 2014
Absolutely.
benzeknees
January 27, 2014
I’m sorry to hear you are having problems with your health. It is frustrating, isn’t it? I was diagnosed just before Christmas with COPD (& yes I was a smoker who waited until it was too late to quit), so I know how frustrating it can be to have limitations placed on your activities.